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Resources

The following resources are provided as a guide for those interested in health information technology and policies related to health information and consumers. NCHICA does not represent

Organizations

Global Views on HIT Issues

Privacy and Security

Health Surveys

Projects and Initiatives

Consumer Empowerment: Consumer Access to Clinical Information Detailed Use Case (from HIMSS website)
http://www.himss.org/content/files/HITSP/CACIDetailedUseCaseFinal.pdf

National Partnership for Women and Families
http://www.nationalpartnership.org/site/PageServer?pagename=ourwork_hcq_hit

NHIN Watch News (from Healthcare IT News)
http://www.nhinwatch.com/performSearch.cms?channelId=2&resultsPage=3

State Alliance for E-Health Initiative--National Governer's Association for Best Practices
click here

State RHIO Consensus Project
http://www.staterhio.org/


Laws, Regulations and Enforcement

Department of Health and Human Services (DHHS) Office for Civil Rights--HIPAA
http://www.hhs.gov/ocr/hipaa

Summary of HIPAA Privacy Rule-Same as above, but a summary
http://www.hhs.gov/ocr/privacysummary.pdf

NC General Assembly website
http://www.ncga.state.nc.us/homePage.pl

Readability of HIPAA Notices
http://www.privacyrights.org/ar/HIPAA-Reading.htm

Wired for Health Care Quality Act (from Senator Ted Kennedy's website)
http://www.tedkennedy.com/content/157/the-wired-for-health-care-quality-act

Wired for Health Care Quality Act of 2007 (from e-Health Initiative website)
http://www.ehealthinitiative.org/initiatives/policy/wiredsummary.pdf

Your Rights Under HIPAA-Patient Privacy Rights Organization
http://www.patientprivacyrights.org/site/PageServer?pagename=YourRights


Data Breaches

Chronology of Data Breaches (Privacy Rights Clearinghouse).

Health Privacy Stories (Health Privacy Project Organization)
http://www.healthprivacy.org/usr_doc/Privacystories.pdf


PHRs, EHRs, other Health Technology and Information Exchange

PHRs

PHR Vendors


EHRs

Information Exchange

Health Literacy and Education

Technical Glossary-Patient Privacy Rights Organization
http://www.patientprivacyrights.org/site/PageServer?pagename=glossary

Agency for Health Research and Quality (AHRQ )-National Resource Center for Health Information Technology-Knowledge Library
click here

Association of American Medical Colleges (AAMC)-List of Electronic Health Record Resources
http://www.aamc.org/patientcare/ehrresources/start.htm

North Carolina Institute of Medicine-Task Force on Health Literacy
http://www.nciom.org/projects/health_literacy/health_literacy.html

EHealth Terms in Plain English
http://www.aishealth.com/EHealthBusiness/EHealthTerms.html

EHR Terminology
http://www.emrconsultant.com/glossary.php

Glossary of Health Care and Health Care Management Terms-Provided by Health Services Information Library Information Center (UW School of Public Health and Community Medicine)
http://depts.washington.edu/hsic/resource/glossary.html

Healthcare Coverage Glossary (Blue Cross Blue Shield)
http://www.bcbs.com/coverage/glossary/index.html#h


Issues Based on Interest Groups

Medicare to Test Personal Health Information for Senior Citizens - Article from Senior Journal (July 2006)
http://www.seniorjournal.com/NEWS/Medicare/6-07-26-MedicareToTest.htm

Medicare Services Agency Tests Personal Health Records-eWeek.com (July 2006)
http://www.eweek.com/c/a/Health-Care/Medicare-Services-Agency-Tests-Personal-Health-Records/

Design of a Knowledge-Structured Personal Health Record for Application
in Preventive Care for the Elderly-MedInfo (2004)---Example of French Application
http://www-test.biomath.jussieu.fr/~pz/FTPapiers/Ghez_MEDINFO2004P


Research

Consumer Empowerment in Healthcare Information Exchange: An Investigation Using the Grounded Theory Approach (2008, 396 pp). Sherrie Drye Cannoy, PhD.

AcademyHealth
http://www.academyhealth.org

Kay Center Symposium
http://www.cgu.edu/pages/4219.asp

Dorenforest Institute for Health Information (through HIMSS)
http://www.himss.org/foundation/histdata.asp

McDowell Research Center
http://www.uncg.edu/bae/mrc

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